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Text Graphic: 'Recommended Daily Requirement - The Stigma of Sickle Cell Anemia'.

DATELINE: 19 February, 2007

Transmitted by J.R. Perry, III, USA

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RECOMMENDED DAILY REQUIREMENT - THE STIGMA OF SICKLE CELL ANEMIA: Detroit's J.R. PERRY III talks about his crusade for more awareness and compassion for sufferers of Sickle Cell Anemia and the search for a cure.

Detroit, MI, USA - There's quite a lot of stigma toward the whole subject of sickle cell anemia. People can feel guilty because they carry a gene and they choose not to talk about it. So they need to talk about it to start breaking down the barriers and the stigma. People are a bit sensitive about screening but you now can be enrolled in a program and start to care for your baby with sickle cell anemia. Sickle cell anemia can no longer be overlooked upon as a largely black disorder. There has been the crossing of racial boundaries with sickle cell.

Sickle cell anemia has not been highlighted because it is a black disorder so it has not received any spotlight with interracial mixing. We are starting to see white babies born with sickle cell anemia. Although times have changed, people still have a stigma about sickle cell anemia they think it is a "curse of the devil". Many physicians and scientists, both black and white, have complained that restrictions against blacks with the sickle cell trait was a senseless stigma and unscientific suggestion that their genes were somehow inferior - in addition of its use in barring blacks [from job, etc.]

Photo of J.R. Perry, III.The Air Force Academy cited the trait, [and it] has also been cited by the Navy in keeping blacks out of the submarine service and by the Army - [all these cases here in the United States.] They will not allow the sickle cell trait carriers to become aircrew members.

This policy persists in the Air Force itself despite today's change in admissions policy but it is under review. Blacks have also been charged more money for insurance policies when it was learned that they had the trait. Sickle cell trait screening has not been limited to the military or to the insurance companies. In the chemical industry, theories have been expounded for years that sickle cell trait carriers were at special risk in the chemical work place.

The Dupont Company said, in February 1980, that it routinely gave pre-employment blood tests to all blacks to determine who might be a sickle cell trait carrier. Today the law would be condemned as racial profiling.

The stigma was made worse by a misunderstanding of the inheritance of the condition, contrary to reports of premature deaths, carriers of the sickle cell gene were - in almost all cases - healthy at genetic screening, Public immunization programs have also raised suspicions among blacks about sickle cell anemia. Screening programs of the 1970's created misinformationm confusion and [many] feared inadequate planning and preparation on the part of the medical profession and public health officials.

The prejudices about the disease haved resulted in unnecessary stigma and discrimination. Of this confusion and misinformation a great suspicion arose in the African American community that the sickle cell policy was another instrument of genocide.


J.R. PERRY, III - is an activist, singer and radio talk show host. J.R. Perry's motto's are "Let's Cure Every Cell For Sickle Cell Anemia" and "Just Put The Guns Down For The Life Of Human Beings" and "Let's Preserve The Quality of Life".

If you would like to contact J.R. Perry you can visit his website or email him at jrperry3@aol.com or jrperry3@yahoo.com or cureeverycell@yahoo.com www.jrperry.voice123.com


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