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Marta Russell, the acclaimed Los Angeles writer on disability rights sends me an e-mail this weekend which reads simply:
This terse e-mail provoked two reactions:
I fully accept that one of the responsibilities of publishing is to "comfort the afflicted." Lord knows, I work hard every week to see that we do just that. At the same time, my reaction to e-mails like Ms. Russell's is that I MIGHT JUST ACTUALLY have a queue of VERY IMPORTANT issues demanding space here and my attention. When I received this e-mail, I already had a file bulging with the following items:
Simply put: there seems to be a growing number of individuals out there who believe (mistakenly, I suspect) that I or the G21 have some type of impact on issues. The assumption is made that we have enough of a readership to "get the word out" about their concerns. While this is a flattering notion, my suspicion is that it is laughably far from the truth.
As Ms. Russell says most eloquently in the introduction to her book:
I think immediately about the kvetching so many of our "business people" here in the United States did after the passage of the Americans with Disabilities Act(ADA) and how lax the enforcement of the Act remains. But I also think about some of my fellow webmistresses and -masters here on this new medium who, though they know about the Bobby site, simply haven't bothered to review the recommendations there or run a simple diagnostic of their accessibility.
And I think about the number of municipalities that are woefully lacking in making even the most reasonable accomodations in public transportation, in convention facilities, in public meetings, for people with disabilities. The fact is, to paraphrase Ralph Ellison, we have made what can only be considered a conscious attempt to get people with disabilities out of sight. WE HAVE TRIED TO MAKE THEM INVISIBLE PEOPLE. Worse than a reservation system, we have relegated them to the status of "benign neglect." It speaks to the very nature of our Western capitalist system that this has taken place. I can't even think of a single disabled person portrayed on national television here in the United States except that lone doctor on ER!
I could go on and on, but you would be better served by reading Marta Russell's book. She, after all, has to live with this air-conditioned nightmare.Done anything on disability oppression lately???
followed by the URL to her the publisher of her book Beyond Ramps, Common Courage Press of Maine. (The link takes you to that page, as does clicking on the image of the book-jacket below. )
The foregoing is not written to minimize, in any respect, the importance of the issue of our (mis)treatment of disabled citizens. G21 reviewer Bob Powers, in fact, has written about Ms. Russell's referenced book at the Columbus[OH] Free Press site.
"Americans seem to have lost sight of the fact that policies are social decisions and that these decisions can result in the de-valuation and even loss of human life. I am often asked why I write so much about disability. Other topics are far more 'sellable' (that is certainly true). But the past years have made it insidiously apparent that the plight of disabled people, like canaries released into the coal mines to detect whether there was enough oxygen in the air to survive, is a barometer for the 'progress' or lack of it in our over-capitalized civilization. Disability and disability policy--past, present and future--is a tool for all to rate our present socioeconomic order."
Rod Amis has published this magazine, in some form, since 1990. His work has appeared in the San Francisco Bay Guardian Online, NRV8, and Suite 101. He writes a weekly column on the WWW for Andover News Network, and is a contributing writer on Information Technology issues for Faulkner Information Services. The web version of this magazine has been published since March, 1996. Mr. Amis resides in New York City.
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